2014 FSHD Connect, the FSH Society’s biennial international conference of patients, families, researchers and clinicians, was held in Boston on August 16-17th. Over 200 people attended, the largest such gathering to date. In addition to lectures by a stellar faculty of world-class researchers, attendees gathered in breakout sessions to discuss a wide variety of topics that patients and families grapple with every day.
The conference and FSHD were covered on Boston’s WCVB television station, which profiled two attendees, Ray Jordan and Cyndi Segroves, who had traveled long distances to come to the meeting. Watch the WCVB news clip here.
Traveling all the way from Kenya to attend the meeting were Chris Chege and his wife Keziah Waitaka!
Unedited video recordings of the talks on both days are available on YouTube:
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