Highlights include: Annual research report, with updates from FSH Society grant recipients. Groundbreaking study establishing that FSHD may be the most prevalent of muscular dystrophies. A new NIH-funded Wellstone Center… Read More »
FSH Watch Summer/Fall 2014 issue is out
New biotech targets FSHD
Three entrepreneurs who have been affected personally by FSHD announced at this year’s FSHD Champions meeting that they have established a biotech dedicated to developing a treatment for FSHD. The new… Read More »
FSHD researchers gather in San Diego
The 2014 FSH Society FSHD International Research Consortium workshop is being held as an ancillary meeting on Friday and Saturday, October 17-18, 2014, prior to the opening of the American Society for Human… Read More »
FSHD is one of the most prevalent neuromuscular disorders
Many researchers have long suspected that the number of individuals with FSHD is significantly greater than has been reported. A new study from the Netherlands bears out this suspicion and… Read More »
Interview with Daniel Perez
Living with and fighting against a deadly disease By Jessica Bartlett, Boston Business Journal Dan Perez, President and CEO of the FSH Society, has testified nearly 40 times before Congressional… Read More »