selfie noun, informal – a photograph that one has taken of oneself, typically one taken with a smartphone or webcam and uploaded to a social media website – Oxford Dictionary Our national… Read More »
#FSHDselfies Shoot a Selfie, Raise Awareness
FSHD Connect Scholarship Program
Great news! We’ve been able to set up a scholarship fund to cover the registration fees for FSHD patients and family members who need financial assistance to attend this year’s… Read More »
Opera legend Frederica von Stade to sing for FSH Society
From PRWeb On Thursday July 24, 2014, the FSH Society will hold a very special benefit concert at Yoshi’s Jazz Club in San Francisco with opera’s legendary singer, Frederica von Stade, who… Read More »
FSH Watch Spring 2014
You can read and download it by clicking here. Highlights of this issue include the following: Details about FSHD Connect, our biennial meeting that brings together patients and families with… Read More »
Michelle Mackay and Retired Kellogg’s CEO David Mackay Host Second Annual FSH Society Fundraiser
From PRWeb Couple Builds upon Success of Last Year’s Event to Raise Awareness of Little-Known Disease at Lakeside Michigan Event Gull Lake, Michigan – May 25, 2014 – After last… Read More »