Saturday, July 18, 2015 1:00-5:00 pm
A Social Afternoon featuring June Kinoshita!
Ellen and Jeff Rennell’s Backyard
3744 Moore Street, Mar Vista, CA 90066. 1:00-5:00 PM
A gathering for people with FSHD from the Los Angeles region, for networking, learning, advocacy and more! Organized by the FSH Society and the LA FSHD CONNECTS volunteers, the meeting provides opportunities for people to strategize about what our needs are as a group, whether it is physical therapy, caregiving, mobility aids, physician referrals, etc. We are creating a community of people who are connected by FSHD who wish to find support, answers, and empowerment.
Click here for more information about attending the event.
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