We’re excited to announce the arrival of our new “About FSHD” brochure. Updated with the latest information on genetics, symptoms, diagnosis, patient care and more, this is your essential guide to understanding facioscapulohumeral muscular dystrophy, whether you have just been diagnosed or have lived with FSHD for years. The brochure includes a convenient medic alert card for you to carry in your wallet. Download our online version here.
Join the FSH Society (if you are new) or contact us, and we’ll mail you a copy!
Miranda Collin says
Hello – Could you please email or mail me a copy of the new brochure for FSH? Thank you.
June Kinoshita says
Send us your address and we’ll mail you a copy!
bob louden says
No electronic version of the new “About FSHD” brochure??? Much easier to get the word out!
June Kinoshita says
You can download it on our Resource page, but the hardcopy version is worth having!
https://www.fshdsociety.org/resources/
Abigail says
Please send new fsh brochure
June Kinoshita says
You can download it here: https://www.fshdsociety.org/resources/
If you would like a hardcopy, please send us your postal address.
John Combs says
Thanks for all you do June!