By June Kinoshita When I attended the Los Angeles Ghostly Gala last week, I met an extraordinary woman, Donna Russo, an actress and dancer with FSH muscular dystrophy. Donna told me… Read More »
Dancer with FSH muscular dystrophy has a documentary dream
Ghostly Gala to auction luxury leather goods with a back story
The Ghostly Gala, the first-ever fundraising gala in Los Angeles for the FSH Society, has scored another coup with the donation of a collection of stylish, exquisitely crafted leather accessories from… Read More »
International workshop spotlights progress in facioscapulohumeral muscular dystrophy research
Report by Charis Himeda, PhD The FSH Society’s 2015 International Research Consortium and Research Planning Meetings, held in Boston on October 5-6, 2015, brought together over 100 investigators, including leaders… Read More »
Comedian Wendy Liebman to host the Ghostly Gala
We have good news and bad. Our Ghostly Gala celebrity host, Max Adler, just announced that he has been cast in the next Clint Eastwood movie. According to the Hollywood… Read More »
October member meetings
Tuesday, October 20, 2015 Denver 7:00pm-9:00pm. A gathering to socialize, exchange knowledge and advocate for FSHD. This meeting will explore ideas for a fundraising event! More info here. Saturday, October… Read More »