Yes, we’re talking about FSHD On those rare occasions (such as the FSHD Connect meeting) when large numbers of individuals with FSHD gather in one place, one can’t help but… Read More »
The very model of a modern epigenetic disease
Kelli O’Hara dazzles in “The King and I”
Congratulations to FSH Society honorary board member Kelli O’Hara for her much-anticipated debut in the role of Anna in the current Broadway revival of “The King and I.” The production… Read More »
In Memorium: Remembering Robert F. Smith, J.D., long-time FSH Society Board member
We are deeply saddened to report that Bob Smith, a member of the FSH Society’s Board of Directors, passed away last night following a brief illness. Bob was an attorney practicing… Read More »
Setting a new record in our funding of research
In the first half of 2015, the FSH Society has awarded $485,840 in grants to new projects in facioscapulohumeral muscular dystrophy research. These projects were among a competitive group that… Read More »
FSH Society’s Daniel Perez presents to MDCC
Daniel Perez, president and CEO of the FSH Society, represented the FSHD community at last week’s meeting of the Muscular Dystrophy Coordinating Committee (MDCC). The day-long meeting was held on… Read More »