By Russell Caratenuto, FSH Society Ambassador As a child I never second-guessed my ability to stick out my shoulder blades and make what my friends would call “wings”. This difference… Read More »
“I decided to fight back”
Recently published research
The publications listed below were supported by the FSH Society in the form of research fellowships and travel grants. We thank our many donors for providing the funding to advance… Read More »
Carden Wyckoff on Living with Muscular Dystrophy
FSH Society Ambassador Carden Wyckoff recently created a series of posts on Avelist regarding misconceptions and living with FSHD. Below is her latest post on living with muscular dystrophy as… Read More »
August Member Meetings!
We are west coast heavy this month. Our meetings are steered by FSH Society volunteers and designed to serve the interests of individuals living with FSHD, their families, and friends. Our goal… Read More »
Kristin Duquette speaks about the 25th Anniversary of the Americans with Disabilities Act with Huffington Post Live
The Huffington Post hosted a live discussion around the 25th anniversary of the Americans With Disabilities Act. Our very own Kristin Duquette, a decorated athlete and activist, participated in the… Read More »