The following is from the transcript to a session conducted on Friday, November 13, 2015, over the FSH Society’s Facebook page with Julie Hershberg PT, DPT, NCS. Hershberg is a physical… Read More »
Ask the Physical Therapist: Can braces or taping assist weak muscles?
Music Therapy and Facioscapulohumeral muscular dystrophy
The Los Angeles FSHD Connects group will be meeting on Saturday, February 13.FSH muscular dystrophy can weaken muscles involved with breathing, so we invited Chris Anderson, a music therapist who uses… Read More »
Join a team! Boston Basketball Tournament
UPDATED. The FSH Society is holding a basketball tournament in Boston on March 21, 2016. For more information about signing up or purchasing tickets, please email us or call 781-301-6649. Team registration… Read More »
Scholarship rewards students for spreading muscular dystrophy awareness
The FSH Society has teamed up with the Jain Foundation and 7 other patient advocacy organizations to fund scholarships to college students who teach others about hereditary muscle-weakening diseases. These… Read More »
Acceleron plans to launch Phase 2 FSHD trial this year
According to a Boston Business Journal story, Cambridge, Massachusetts-based biotech Acceleron Pharma has plans to test its ACE-083 compound in facioscapulohumeral muscular dystrophy patients in a phase 2 clinical trial later… Read More »