Did you hear? The FSH Society has been awarded a grant by Staples Foundation. We plan to use the donation to support public awareness and youth education about FSHD, such as a social media awareness raising scholarship competition administered by the Jain Foundation.
Eligible students can compete this spring for the scholarship by posting a fact and image about FSHD. If you know a student who would be interested in this competition, please spread the word about this opportunity. For more information on how to submit, visit: http://www.jain-foundation.org/scholarship/social-media.
The Staples Foundation is the private charitable arm of Staples, Inc., through a program called 2 Million & Change that allows Staples associates around the globe to direct donations in the total amount of about $2 million each year.
The Jain Foundation is a non-profit foundation whose mission is to cure muscular dystrophies caused by dysferlin protein deficiency, which includes the clinical presentations Limb-girdle muscular dystrophy type 2B (LGMD2B) and Miyoshi muscular dystrophy 1 (MMD1). The FSH Society is partnering with the Jain Foundation to share knowledge and raise awareness about lesser known muscular dystrophies.
My family has several generations sufferers of FSHD MD which was finally diagnosed in 1992. In my immediate I and two children have this terrible disease and I so pray that it can be controlled , changed and forever stopped.
We’re working as fast as we can to advance the research while doing what we can to help people living with FSHD get the information and social support they need to live as fully as possible. We hope everyone who is working for a corporation will ask whether their employer has matching gift or other corporate giving programs. That’s how this Staples foundation grant came about. We can’t do this without our members’ help!