FSH Society President & CEO Daniel Perez has submitted his annual testimony to the U.S. House Appropriations Committee, Subcommittee on Labor, Health and Human Services, Education and Related Agencies (LHHSE). This year, the Society has requested $24 million FY2017 appropriations for NIH research on FSHD. Identical testimony was submitted to the Senate.
The following table from the FSH Society’s testimony shows the progress being made in NIH funding for FSHD projects.
“As tiny as it is, the FSH Society continues to deliver huge results in improving our understanding of FSHD — and in turn helping scientists be more competitive at NIH,” Perez notes. Check out our chart of 2015 NIH-funded projects that got their start with the help of FSH Society grants.
We encourage you to share these testimonies with your Senators and House representatives via their Chief of Staff or Health Legislative aides to let them know that increased funding for NIH and specifically for FSHD research is important to you. You can locate your Congresspersons at Senate.gov or House.gov and contact them by phone, email, web or letter.
Read and download the House testimony here, and the Senate testimony here.
Thanks, Daniel for doing so much to help promote increased funding for FSHD Research. Please support Daniel and our own cause by contacting your members of Congress.