A message from Steve Abelman: It is hard to believe that nearly two years have gone by since Cyndie Abelman’s passing. Not a day goes by where her two beautiful… Read More »
Cyndie Abelman Memorial Fundraiser
Chipotle Fundraiser in Castle Rock, CO
Make dinner a selfless act by joining us for a fundraiser to support the Walk & Roll to Cure FSHD! Just come into the Chipotle at 5642 Allen Way, Space 104 in Castle Rock,… Read More »
Video diary: Ryan Levinson
FSH Society Ambassador Ryan Levinson just transmitted this video from his berth in Fakarava, a tiny atoll in the Tuamotu chain of French Polynesia! He shares how he has adapted his movements to… Read More »
Q & A with Dr. Rabi Tawil, Part 1
Here are selected questions from an FSH Society webinar held on October 1, 2015, with Rabi Tawil, MD, co-director of the MDA Neuromuscular Disease Clinic at the University of Rochester,… Read More »
San Diego members get a stem cell tutorial
By Amy Bekier, San Diego, California On July 30, 2016, twenty-five FSHD patients, family and scientists assembled at Genea Biocells in La Jolla, California, to hear presentations by senior scientists… Read More »