Our newest issue of the FSH newsletter is here! We’re so excited to share new scientific updates, patient stories, and the latest FSH Society initiatives. Highlights include: The creation of… Read More »
The FSH Watch 2016 Issue 2 is out!
Carden and Spencer Wyckoff to Set off on Piggyback Adventure through the Appalachian Trail
FSH Society Ambassador Carden Wyckoff and her brother Spencer are at it again! This time, they will be traveling 79-miles through the Georgia portion of the Appalachian Trail to raise… Read More »
Acceleron to host webcast on FSHD clinical trial
(Via BusinessWire.) Acceleron Pharma Inc., a clinical stage biopharmaceutical company focused on the discovery, development and commercialization of innovative therapeutics to treat serious and rare diseases, today announced that it… Read More »
Fruit fly model of FSHD is now available
The laboratory of Peter Jones at the University of Massachusetts Medical School reports that Drosophila (fruit fly) lines for studying DUX4 and FRG1 overexpression are freely available worldwide from the… Read More »
Atlanta Kickoff Event October 15th, 2016!
If you live in the Atlanta area, join us for a casual dinner and cocktails as we begin planning our next fundraising event! Thank you to Meredith & Mica Maddry who… Read More »