Produced for the FSH Society’s 25th anniversary, our new documentary tells the story of how the Society’s work has led to the discovery of the genetic cause of facioscapulohumeral muscular dystrophy and brought patients out of the darkness into the light. We premiered the film at our CureFSHD gala on November 11.
To all the patients, families and friends who have supported the Society through the years, this is your story. Please share this with others to help them understand what FSHD is, the great progress that has been made, and how their support can lead to a brighter future for tens of thousands of patients.
This young lady is amazing. I would love for her to connect with my son who is 16 and has been battling this for 4 years now. We live close as she is in Vermont and we are in New Hampshire. He doesn’t know anyone else with this disease and we, too, travel to Boston for appointments. Thank you so very much for this information. It was helpful.
This is an outstanding video that truly explains the history of the Society. It is very well done.
Thank you so much! Two of my daughters and I have fsh and this video was the most informative I have seen since we were diagnosed. Much appreciated! ❤️ Thank you again to the FSH Society and everyone who helped make this video.