Living with FSHD: Katy Kat in the Hat (Video)

Ellen Feldman, filmmaker, created this documentary about a woman she met who has FSH muscular dystrophy. “Katy Kat in the Hat is a story about a woman who defies all odds after being diagnosed with FSH muscular dystrophy at the age of 21,” Feldman said. “Katy’s muscles may be weakening but her spirit becomes stronger. Despite her degenerating condition, she continues to find new solutions to live her life full of adventure in the Colorado Rocky mountains. She surrounds herself with nature, music, animals, and good friends everywhere she goes. She takes every problem and turns it into a challenge. Katy Kat in the Hat is so full of adventure, when you first meet her you will think she is a character straight out of a Doctor Seuss book.”