Here are selected questions from an FSH Society webinar held on October 1, 2015, with Rabi Tawil, MD, co-director of the MDA Neuromuscular Disease Clinic at the University of Rochester,… Read More »
Q & A with Dr. Rabi Tawil, Part 1
San Diego members get a stem cell tutorial
By Amy Bekier, San Diego, California On July 30, 2016, twenty-five FSHD patients, family and scientists assembled at Genea Biocells in La Jolla, California, to hear presentations by senior scientists… Read More »
FSH Society commits over $1.38 million to research in 2016
Grants approved from February 2016 cycle set new record. The FSH Society has committed $648,774 in funding to five research projects that aim to break new ground in the search… Read More »
2016 FSHD Connect Conference
Register at the following links: Research Connect Patient Connect CureFSHD Gala This year, for the first time, we have combined our two signature meetings into FSHD Connect, a single, three-day… Read More »
New member of our team
Beth Johnston has joined the FSH Society in August of 2016 as Development Officer. She will work with the Executive Director and the leadership team to create, execute and grow the… Read More »