Written by Paul Shay Groton, Massachusetts I am one of the lucky, late-onset FSHers: diagnosed at age 57, now 71. As my progression has been relatively slow over those 14 years,… Read More »
Accessibility hacks, mobility aids, and tips (Part 1 of 3)
Team FSHD Cycling eyes epic race in June 2017
by June Kinoshita During the month of June of this year, the FSHD community will enjoy the thrill of having one of its own lead an eight-person team in the… Read More »
Q &A on potential use of BET inhibitors for FSHD
On February 13, Canadian biotech, Reserverlogix announced that facioscapulohumeral muscular dystrophy (FSHD) is one of two new indications it is pursuing involving its lead drug, apabetalone (RVX-208) which inhibits bromodomain… Read More »
Upcoming Denver FSHers Meeting: March 25th, 2017
Written by Beth Johnston, Development Officer at the FSH Society When my husband, Jeff, was diagnosed with FSHD in 2001 (after years of wondering what was going on with his… Read More »
Get our new Bach 2 Bowie T-shirt!
Our eye-catching T-Shirts, totes and mugs feature the Bach 2 Bowie logo from the Ghostly Gala, our annual Los Angeles-based event to raise awareness and funds to fight FSH muscular… Read More »