Thank you to Missy Cassidy for submitting the request to the Governor’s office! Next year, let’s go for proclamations in all 50 states!
It’s officially FSHD Awareness Day in Maryland!
Team FSHD Cycling’s RAAM has begun!
DONATE TO HELP TEAM FSHD CYCLING’S CROSS ITS FUNDRAISING FINISH LINE!! We are more proud than we can say to have Team FSHD Cycling embark today on the 3,000-mile Race… Read More »
SHIFT Communications wins PCNE Bell Ringer Award for American Ninja Warrior Campaign
We are proud and honored to announce that our PR/marketing partner SHIFT Communications earned a Publicity Club of New England Bell Ringer Award! A Silver Bell was awarded for… Read More »
Muscle Activation Exercises
Lynnette Rasmussen OTRL provides detailed, hands-on demonstrations of a variety of gentle exercises targeting specific muscles. Developed in collaboration with an FSH muscular dystrophy patient, these exercises demonstrate principles that… Read More »
Check out our Orange Slice Selfies Video!
Check out our brand-new Orange Slice Selfies video to find out how you can join in celebrating World FSHD Day coming up on June 20th! With the help of great… Read More »