Notable findings and advances from the past six months by DANIEL PAUL PEREZ Chief Science Officer, FSH Society Asterisk denotes FSH Society funding acknowledged in paper. “Conservation and innovation in… Read More »
Recent FSHD research publications
Charity Navigator rates FSH Society as “Exceptional”
The FSH Society has earned its tenth consecutive 4-star Charity Navigator rating! According to Michael Thatcher, President & CEO of Charity Navigator, “Only 1% of the charities we rate have… Read More »
Blazing a Trail to the Future
You inspire me! You have faithfully supported, worked, and engaged your network and loved ones to join our quest for treatments and a cure for FSHD. I want to acknowledge… Read More »
An undeniable sense of optimism
In this interview, Dr. Jeffery Statland of the University of Kansas Medical Center explains how FSH Society funding seeded the creation of the seven-site Clinical Trial Research Network (CTRN), which… Read More »
Rediscovering the Freedom of Bicycling
by MICHELLE CHAUVIN Sterling Heights, Michigan Bike riding is something I’ve always enjoyed. After my husband and I were married, we would drag our bikes down the stairs from our… Read More »