UPDATED October 30, 2017 Researchers at the University of Rochester in New York are conducting a research study to learn more about a potential symptomatic therapy for FSHD. This study… Read More »
Testosterone and human growth hormone clinical trial for FSHD
Carden Wyckoff elected to Board of Directors
Youngest member, with a passion for advocacy and fundraising The FSH Society is pleased to announce that Carden Wyckoff was elected to serve on the Board of Directors on September… Read More »
An FSHD Antisense Therapy Primer
Q&A With Dr. Yi-Wen Chen by JIM ALBERT, Eldersburg, Maryland Antisense therapy is a form of treatment for genetic disorders. In the past year antisense drugs have been approved by the… Read More »
Not Your Mother’s Yarn
FSH member Kathy Senecal will be fundraising for the FSH Society in the coming months at four different craft fairs through her business, Not Your Mother’s Yarn. 100% of the… Read More »
FSHD Family Day Conference in Los Angeles
The FSH Society’s Los Angeles FSHD Family Conference will be held on October 21, 2018, at Santa Monica College’s Bundy Campus. Join patients, families, and top researchers and clinicians for… Read More »