LISTEN LIVE ON WEDNESDAY, SEPTEMBER 27, 2017, HERE. A podcast of the interview will be available at this link. This month’s radio show guest is Steven Blier, a pianist and… Read More »
Radio Show – Steven Blier, musician extraordinaire
Anson Calder Adds Orange Wallet to Collection to Benefit FSH Society
Meet the newest addition to the Anson Calder collection: The Cash Wallet in FSHD Orange! In recognition of FSH muscular dystrophy (FSHD), Anson Calder designed the Cash Wallet in the… Read More »
FSH Society Board of Directors Names Mark A. Stone as Next Chief Executive Officer
Co-founder and Former CEO Daniel Paul Perez to continue with the FSH Society as Chief Science Officer LEXINGTON, Massachusetts – William R. Lewis Sr. M.D., chairman of the Board of… Read More »
Pappas Family Featured on Fox 25 Boston!
Fox 25 Boston recently shared the Pappas family’s journey with FSHD and youngest member, Lexi Pappas’ touching short documentary. Lexi Pappas of Natick, MA was diagnosed with the disease in… Read More »
Award-winning author Lisa Reinicke author lends her support
Readers of FSH Watch may remember Katie Ruekert’s personal story about how she struggled to come to terms with her diagnosis of FSH muscular dystrophy, and how her journey eventually… Read More »