A 2017 mid-Atlantic, physically accessible birding “Big Year” by DEB CALHOUN, Frederick County, Maryland Midsummer last year, I became determined to fight back against FSH muscular dystrophy. Most of my friends and… Read More »
Gimpy girl goes birding
Hot off the press: FSH Watch
The latest issue of FSH Watch is here! Highlights: Clinical Trial Research Network receives major NIH award World FSHD Day 2017 FSHD Family Day Conference in Columbus, Ohio Bone health… Read More »
“About FSHD” brochure is now available in Chinese!
Thanks to our friend and fellow FSHD advocate in China, Ning Baisheng, our “About FSHD” brochure has been translated and adapted for readers in China. Baisheng says patients in China… Read More »
Relive Team FSHD Cycling’s Race Across America!
Check out this amazing video of Team FSHD Cycling’s epic race this summer. Huge thank you to Emily Pollock for creating this priceless documentary. Warning: Have a box of tissues… Read More »
FSHD Canada awards $20K for FSH Society research grant
The FSH Society is pleased to announce that it has received a grant of $20,000 from the FSHD Canada Foundation in support of an exciting, treatment-focused project, “Developing LNA-based therapy… Read More »