The Physiatrist’s role in managing FSH muscular dystrophy

Many of us have never heard of this field of medicine, but physiatrists are a very important resource for FSHD patients. In this video, Dr. Susan Keeshin of Shirley Ryan Ability Lab in Chicago, one of the nation’s leading rehabilitation center, introduces the field of physiatry for FSH muscular dystrophy patients. Dr. Keeshin says that your neurologist or primary care doctor should refer you to a physiatrist early on in your diagnosis. Physiatrists evaluate you to enable you to maximize your function and independence, prevent secondary medical complications, and limit physical deformities. In her talk, Dr. Keeshin explains the uses of physical therapy, occupational therapy, orthotic braces, abdominal binders, mobility devices, etc. You can download her slides HERE.

Thanks to Dave Lukas of the FSH Society’s Chicago support group for recording this talk. (We recommend listening with headphones for better audio clarity.)