We are pleased to share these videos from our 2017 FSHD Family Day conference in Los Angeles, held on October 21, 2017. We are so grateful to Laurie Heyman and Selina Lai for their help with programming and event logistics; David Garden for recording the conference video; and Ellen Rennell for editing the videos. A big thank you to all!
- Importance of global research and patient connectivity
June Kinoshita, Chief Strategic Programs Officer, FSH Society - Genetics, disease mechanism, and therapeutic targets FSHD
Tahseen Mozaffar, MD, UC Irvine Muscular Dystrophy Clinic - Physical therapy and exercise for FSHD
Julie Hershberg PT, DPT, NCS, USC Division of Biokinesiology and Physical Therapy - The Clinical Trial Process: Outlook and Challenges for FSHD
Perry Shieh, MD PhD, UCLA Neuromuscular Center - Using stem cells for FSHD Modeling and treatment
Amanda Rickard, Senior Scientist, Genea Biocells, San Diego - Emerging treatment strategies for FSHD
Peter Jones, PhD, Univ. of Nevada Reno School of Medicine (slides)
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