by Don Nemke, Oro Valley, Arizona My name is Don Nemke and I’m 72 years old. I’ve had symptoms of FSH Muscular Dystrophy starting 60 years ago and was formally diagnosed… Read More »
Don Nemke’s Tips for Living with FSHD
Mid-Atlantic FSHD Family Day presentations
Attendees at our FSHD Family Day conference in Baltimore this past Sunday enjoyed an excellent series of talks by the clinicians and researchers at the Kennedy Krieger Institute. Here are… Read More »
It’s enrollment time for Combined Federal Campaign
Anyone employed by the federal government can make donations to the FSH Society through the Combined Federal Campaign. Please encourage family and friends who qualify to include the FSH Society… Read More »
UMass study seeks volunteers
Physicians and researchers at the University of Massachusetts Medical School (UMMS) seek individuals with facioscapulohumeral muscular dystrophy (FSHD) to participate in an FSHD Biomarker Study. This will be conducted by… Read More »