From our 2018 FSHD Connect conference, researchers present their work on therapies to suppress the toxic DUX4 gene. Two companies may be going into clinical trials in 2019. This is… Read More »
DUX4-suppressing therapies are nearing the clinic
Acceleron Receives FDA Orphan Drug Designation for ACE-083
From BusinessWire CAMBRIDGE, Mass.–(BUSINESS WIRE)–Acceleron Pharma Inc. (NASDAQ:XLRN), a leading biopharmaceutical company in the discovery and development of TGF-beta therapeutics to treat serious and rare diseases, today announced that the… Read More »
Talk Radio: The FSH Society launches national chapter program
Join us on July 25th, 9:00 PM EST / 8:00 PM CST for a live, on-air interview with Beth Johnston and Leigh Reynolds, the dynamic duo who are spearheading the… Read More »
Stance control braces
Contributor: Kathy Senecal, Cromwell, Connecticut As a wearer of a stance control brace for 3 years, I became aware that I have not yet met another individual with FSHD wearing… Read More »
Find your voice through FSH Society radio
With 14 episodes of our monthly FSH Society Radio show now under our belt, we hope many of you are not just listening, but also considering how this medium can give… Read More »