Our community’s premier networking event for immersive learning and community building Our biennial FSHD Connect Conference is an amazing opportunity to meet hundreds of patients and families, as our leading… Read More »
2018 FSHD Connect Conference registration is now open!
Tips for getting your insurer to approve genetic testing
We hear often from patients and families who are having difficulty getting an insurer to pay for genetic testing of FSHD. It is our impression that the payors are denying… Read More »
FSH Society Talk Radio to interview authors of “I’ll Push You”
Listen live on BlogTalkRadio on Wednesday, January 31, at 9:00 pm EST, or listen and ask questions on the air by calling (949) 270-5953. On our next episode of the FSH… Read More »
Facio selects first series of potential drug development candidates
We are sharing this news release from Facio, the Netherlands-based biotech founded by FSHD advocates and business leaders with the sole mission of developing treatments for FSHD. In this story,… Read More »
Acceleron Announces Preliminary Results from Part 1 of the ACE-083 Phase 2 Trial in Patients with Facioscapulohumeral Dystrophy
We are sharing the following press release from Acceleron Pharma, Inc., regarding the progress of their Phase 2 clinical trial of ACE-083. The FSH Society collaborates with Acceleron to help… Read More »