An experimental gene therapy has been shown to enlarge and strengthen muscles in a mouse model of facioscapulohumeral muscular dystrophy (FSHD). The study was published on November 15 in the… Read More »
Follistatin gene therapy strengthens muscle in FSHD mouse model
Have you pulled down your oxygen mask?
by SUSAN W. AUMILLER, CLTC, Dublin, Ohio Recently I was sitting next to my husband on a flight to Nevada. I had buckled my seat belt and was casually listening to… Read More »
Webinar with Stephen Tapscott MD PhD (video)
From our webinar on November 7, 2018. Dr. Tapscott, one of the world’s leading scientists working on the fundamental understanding of FSH muscular dystrophy, updates us on our understanding of… Read More »
Inaugural Walk & Roll Campaign a Tremendous Success!
by LEIGH REYNOLDS, Kansas City, Missouri When we began planning for the inaugural Walk & Rolls to Cure FSHD, a $105,000 fundraising goal felt ambitious. Then an incredible group of volunteer… Read More »
High-intensity exercise training in FSHD
by Amanda Hill If you or a loved one is affected by FSHD, or any muscular dystrophy for that matter, chances are that you’ve heard it’s best not to exercise,… Read More »