Our 2018 Ghostly Gala, held on October 21 at Los Angeles’ fabled Cicada Club, raised awareness and funds for FSH muscular dystrophy. This year’s theme was comedy, laughing for a… Read More »
Ghostly Gala laughter for a cure
The future is in powerful hands: YOURS
“I have been impressed with the urgency of doing. Knowing is not enough. We must apply. Being willing is not enough. We must do.”―Leonardo da Vinci Throughout 2018, we have made… Read More »
FSH Society latest grant awards
By Daniel Paul Perez & June Kinoshita One of the blue-sky dreams for those of us working toward treatments for FSH muscular dystrophy is regenerative therapy—treatments to generate healthy muscles… Read More »
Talk radio: Skylar Conover, Ms Wheelchair USA
Skylar Conover is excited about acquiring a service dog and will be talking about the experience as she joins Tim Hollenback on Thursday, November 1, 2018, for a live interview…. Read More »
Don Nemke’s Tips for Living with FSHD
by Don Nemke, Oro Valley, Arizona My name is Don Nemke and I’m 72 years old. I’ve had symptoms of FSH Muscular Dystrophy starting 60 years ago and was formally diagnosed… Read More »