Attendees at our FSHD Family Day conference in Baltimore this past Sunday enjoyed an excellent series of talks by the clinicians and researchers at the Kennedy Krieger Institute. Here are… Read More »
Mid-Atlantic FSHD Family Day presentations
It’s enrollment time for Combined Federal Campaign
Anyone employed by the federal government can make donations to the FSH Society through the Combined Federal Campaign. Please encourage family and friends who qualify to include the FSH Society… Read More »
UMass study seeks volunteers
Physicians and researchers at the University of Massachusetts Medical School (UMMS) seek individuals with facioscapulohumeral muscular dystrophy (FSHD) to participate in an FSHD Biomarker Study. This will be conducted by… Read More »
Announcing our St. Louis chapter
We are proud to announce our newest chapter of the FSH Society, in St. Louis, MO. Big thank you to Marsha Sverdrup for stepping up as our chapter director. We… Read More »
Listen up! Columbus TV news features our Walk leader
Check out this audio from an interview with Sue Aumiller, director of our Columbus Ohio chapter, with Mark Blazor from Columbus’s top local station, 610-WTVN. Mark read the Columbus Dispatch’s… Read More »