Last weekend, January 25-27, 2019, a force descended upon the Chicago O’Hare airport. And we’re not talking about the Polar Vortex. Twenty-nine chapter directors and Walk & Roll leaders convened… Read More »
Our inaugural volunteer leadership summit
Muscle activation strategies for FSH muscular dystrophy
Our Dallas support group meeting on January 19th featured outstanding presentations and hands-on demonstrations of muscle activation and the Rolf method, which one of our new Dallas-area members has found… Read More »
FSHD Society names Jamshid Arjomand, PhD, Chief Science Officer
The FSHD Society today announced that Jamshid Arjomand, PhD, has joined the organization as its Chief Science Officer. The Society is the world’s largest research-focused patient advocacy organization for facioscapulohumeral… Read More »
FSH Society Radio – Two perspectives on living with FSHD
Join us via Facebook Live on Wednesday, January 30th, at 8:00 pm Central / 9:00 pm Eastern time for our live interview with two people from the Chicagoland area who… Read More »
Webinar on swallowing and speech in FSHD
Wednesday, February 13, noon to 1:00 pm EST. Register here We are delighted to bring to you this live webinar with Kiera Berggren, a research speech-language pathologist (SLP) in the… Read More »