At the close of 2018, two adventurers accomplished what heretofore was thought impossible – they each traversed Antarctica solo, unaided, on foot. One of these intrepid souls, Louis Rudd, when… Read More »
The 11-step challenge
Bay Area FSHD Family Day Conference
Register here! Join us on Sunday, April 28, for our Bay Area FSHD Family Day conference. It will be held from 1:00-6:00 pm at the beautiful Li Ka Shing Center… Read More »
Industry collaborative workshop on FSHD clinical trial readiness
Yesterday, the FSH Society convened a landmark meeting at the Tommy Douglas Conference Center, a stone’s throw from the headquarters of the Food and Drug Administration (FDA). Several FDA regulators… Read More »
Tips and tricks: Putting on a jacket
Tips and tricks: Putting on a jacket When you are in a wheelchair and can’t raise your arms, putting on a jacket can be a contortionist’s conundrum, even with the… Read More »
Giving a piece of me for research
by HILARY A. C. HOOVER, Ocala, Florida I tested positive for the FSHD gene and am currently asymptomatic. Due to my status, I was asked to donate muscle tissue via open… Read More »