(but were afraid to ask) There’s no doubt that facioscapulohumeral muscular dystrophy is a complicated condition. The challenge of pronouncing it correctly is a piece of cake compared to the… Read More »
Everything you ever wanted to know about FSHD
Tips and tricks for getting up after a fall [VIDEO]
Check out this video by an occupational therapist demonstrating a variety of ways to get up off the floor after a fall. These require having some strength and might not… Read More »
European centers to collaborate on FSHD ReSOLVE study
Three European centers have agreed to collaborate with the FSHD Clinical Trial Research Network on its NIH UO1 grant-funded projects, notably ReSOLVE. In doing so, they join eight US members… Read More »
An update from Mark Stone [VIDEO]
Yesterday, FSHD Society President and CEO gave a special webinar to update our major stakeholders on the progress of the Therapeutic Accelerator initiative and answer their questions. We’re delighted to… Read More »