#GivingTuesday is a global day of giving fueled by the power of social media and collaboration. This year, it falls on December 3, and we are marking the day by… Read More »
#GivingTuesday Telethon
The Future is Now for Natural History Studies
Here’s what keeps us up at night: researchers will find a drug that actually works, and yet without understanding the natural history of the disease, they can’t prove the drug… Read More »
$447,620 in funding for four new projects
The FSHD Society Board of Directors approved $447,620 in funding for four projects submitted in the February 2019 cycle. These grants will move forward four distinct strategies that show promise…. Read More »
Finding strength in our pain
The suffering that FSHD has caused has also made us stronger people By Meredith Huml Angier, North Carolina The words “no cure” and “no treatment” were dropped casually into… Read More »
The Future is Now for Clinical Trials
Our community has been promised for decades that “one day in the future” there will be treatments for FSHD, and so it’s amazing to realize that day is almost upon… Read More »