Here’s a solution to a delicate problem: the Stand Aid PTA, or power-toilet assist. Several of our members have raved to us about this “life-changing invention” that restores independence and… Read More »
Tips and tricks – The Stand Aid
Webinar: CRISPR strategy to treat FSHD
For our next webinar on August 10, at 2 p.m. EST, Charis Himeda, PhD, of the University of Nevada Reno will discuss her pioneering work to show how CRISPR gene-editing… Read More »
Hot off the press: FSHD Advocate
The newest issue of FSHD Advocate has left the printers and will be landing soon in your mailbox. To get an advance look, or if you’re a digital-only reader, here… Read More »
NAD+ supplementation may help aging muscle
Could it be helpful for FSHD? BY AMANDA HILL, HIGHLANDS RANCH, COLORADO In the current absence of a treatment for FSHD, many patients experiment with a variety of lifestyle or… Read More »
Our chapter program is booming!
Since its launch last year, our national chapter program has grown by leaps and bounds. We now have 25 chapters in 18 states! Check out the map above and visit… Read More »