Here are the slides and videos from the Bay Area Family Day conference, held at the Li Ka Shing Center, Stanford Medical School, on Sunday, April 28, 2019. Click on… Read More »
Bay Area Family Day Video and Slides
Stance-control brace webinar [VIDEO]
Here is the recording of our June 8th webinar with Abbey Downing, a certified prosthetist/orthotist from the Hanger Clinic in Wethersfield, CT. Ms. Downing has worked with Kathy Senecal, a… Read More »
TikTok to participate in World FSHD Day
TikTok, the video-sharing app formerly known as musical.ly, is the world’s fastest growing social networking platform. This year, TikTok is participating in World FSHD Day on June 20th. The relationship… Read More »
FSH Society Releases White Paper on Clinical Trial Readiness
New publication details findings from an industry collaborative workshop on facioscapulohumeral muscular dystrophy The FSH Society today announced that it has published a report on its recent workshop with government… Read More »
“Universal Design” is Smart Design
It makes living easier for everyone by Jane Earl, Madison, Wisconsin I am 66 years old, with FSH muscular dystrophy, and live with my 82-year-old husband, Tony Earl, in a… Read More »