Saturday, June 8, 2019 2:00 pm – 3:00 pm Our Connecticut chapter director, Kathy Senecal, wrote in our newsletter about how this type of leg brace made a difference in her… Read More »
Webinar: Stance-control braces
Helping a songbird find her voice
Two weeks ago, we told you about the surprise $50,000 donation to the FSH Society in honor of Ann Blake. Now we learn in this heartwarming video that Blake did… Read More »
Webinar video: FSHD 101
In our webinar from May 22, Samantha LoRusso, MD, provides a concise introduction to the basic facts about FSH muscular dystrophy and answers dozens of questions from our live webinar… Read More »
Medicare coverage for ongoing maintenance physical therapy
Article adapted with permission from Melissa Fox, PT, DPT, University of Virginia Health System. There are times when a short course of physical therapy (PT) can meet your current needs,… Read More »
How to launch your own chapter or Walk & Roll [VIDEO]
Have you thought about what you can do in your own backyard to serve FSHD patients and families in your community and advocate for greater awareness and resources to develop… Read More »