The headquarters of Ezekiel Clothing is tucked in a bland office park in Irvine, California, but inside it’s anything but bland, with its too-cool-for-school interior of concrete, charred timber, and… Read More »
Danny Kurtzman designs for life
MRI-guided biopsy shows promise for clinical trials
Method may predict DUX4 activity in patients’ muscles A central tenet of modern FSH muscular dystrophy research is that the muscle damage in this disease is caused by a gene… Read More »
Organizing a Walk & Roll ─ if I can do it, so can you!
by Susan Aumiller, Powell, Ohio Last year, soon after my son and husband were diagnosed with FSHD, I called the FSH Society and said I’d like to organize a fundraiser…. Read More »
Gear up for World FSHD Day 2019!
Sharpen your orange slicers and polish your selfie sticks! World FSHD Day is on June 20th and you can help us turn social media world orange on that day by… Read More »
Mountains to climb
by Neenah Williams, Colorado Springs, Colorado I was diagnosed with FSH muscular dystrophy at the age of 16. I am now 27 years old and have started to feel more… Read More »