“For all my friends and family out there who haven’t heard, I have recently been diagnosed with FSHD which is a form of muscular dystrophy. It is a progressive disease… Read More »
Chicagoland chapter members invite you to their Walk & Roll to Cure FSHD!
Our annual report card [2018]
We are honored that you chose to support us. FSH muscular dystrophy, a debilitating disease affecting nearly a million men, women, and children worldwide, has long lacked any treatment, but… Read More »
Swallowing and speech in FSH muscular dystrophy
Our recent webinar featured speech language pathologist Kiera Berggren, from the FSHD clinical research center at Virginia Commonwealth University. Berggren has a passion for understanding and treating issues with swallowing… Read More »
Playing the hand you’ve been dealt
By Landon Poindexter One thing I have come to learn in my eighteen-year life is that no matter how hard you try, there is no avoiding hardships that are sent… Read More »
Tips and tricks for managing eye dryness
One of our members went to dry eye clinic recently and they recommended using Glad Press-N Seal as an overnight eye mask for keeping eyes closed and moist. She has… Read More »