Join us via Facebook Live on Wednesday, February 27th, at 8:00 pm Central / 9:00 pm Eastern time for our live interview with Katelyn Michals, a national board-certified licensed acupuncturist… Read More »
FSH Society Radio – Acupuncture for FSH muscular dystrophy
Virginia Commonwealth University joins FSHD network
The FSHD Clinical Trial Research Network (CTRN) has expanded to eight sites in the U.S. with the addition of Virginia Commonwealth University (VCU) in Richmond, Virginia. The VCU site is… Read More »
Our inaugural volunteer leadership summit
Last weekend, January 25-27, 2019, a force descended upon the Chicago O’Hare airport. And we’re not talking about the Polar Vortex. Twenty-nine chapter directors and Walk & Roll leaders convened… Read More »
Muscle activation strategies for FSH muscular dystrophy
Our Dallas support group meeting on January 19th featured outstanding presentations and hands-on demonstrations of muscle activation and the Rolf method, which one of our new Dallas-area members has found… Read More »
FSHD Society names Jamshid Arjomand, PhD, Chief Science Officer
The FSHD Society today announced that Jamshid Arjomand, PhD, has joined the organization as its Chief Science Officer. The Society is the world’s largest research-focused patient advocacy organization for facioscapulohumeral… Read More »