Join us for the first-ever FSHD Family Day Conference to grace the shores of Lake Michigan. Join family, friends, and fellow travelers living with FSH muscular dystrophy for a wonderful… Read More »
Chicagoland FSHD Family Day on October 20
Dyne Therapeutics to support ReSolve study of FSHD
From BusinessWire Dyne Therapeutics, a biotechnology company pioneering targeted therapies for patients with serious muscle diseases, today announced its support for the ReSolve study, an ongoing natural history study designed… Read More »
Tim Hollenback on Milwaukee’s PBS [VIDEO]
We are so excited and proud to see Tim Hollenback, host of the FSHD Society talk radio show, featured by Milwaukee’s 10thirtysix news program last night. In this segment, we… Read More »
CBD and medical marijuana [VIDEO]
Here are the slides and the recording from our webinar with Jennifer Bernstein on CBD and medical marijuana. With the spread of legalized medical marijuana and the passage of the… Read More »
Disappointing news from Acceleron
From Acceleron’s press release Acceleron Pharma Inc. (NASDAQ:XLRN), a leading biopharmaceutical company in the discovery and development of TGF-beta superfamily therapeutics to treat serious and rare diseases, today announced that treatment… Read More »