by Molly White, Dyne Therapeutics Molly White, Dyne Therapeutics It has been a banner year for the biopharma industry, with record investment, groundbreaking COVID vaccine efforts and incredible scientific advances…. Read More »
Voice of the Patient – The Biopharma perspective
Making the Most of the Holidays
A Gift You Give to Yourself! by Leigh Reynolds, FSHD Society Celebrating the holidays can be emotionally draining for many, but for those with a chronic condition like FSH muscular… Read More »
DIY holiday cards
Many of you have asked if the FSHD Society could provide holiday cards you can send to family and friends, asking for donations. We heard you and have come up… Read More »
FSHD drug development pipeline
Growing numbers of companies and academic laboratories are pressing forward with early-stage drug development efforts. This chart shows how far various candidate anti-DUX4 drugs have progressed along the path to… Read More »
Compression belts help me look buff again
by Rick Whitehead, Knoxville, Tennessee I’d like to share one of the most valuable tips I’ve had for dealing with “FSHD belly.” My abdominal core muscles had become like weak… Read More »