#GivingTuesday is a global day of giving fueled by the power of social media and collaboration. This year, it falls onDecember 1, and we are marking the day by holding our second annual GivingTuesday Radiothon to raise funds and worldwide awareness of Facioscapulohumeral muscular dystrophy (FSHD). Streamed over Facebook Live, our intrepid host Tim Hollenback will conduct nonstop interviews from 8:00 a.m. to 10:00 p.m. Central Time with members of our community—activists, celebrities, scientists, doctors, and other people doing awesome things.
How can you help? Join us on our Facebook page to watch, discuss, donate, and invite friends to listening parties. Share the Radiothon with your social media network and invite people to support our campaign. People support people they know. You will be amazed by the multiplier effect of sharing. And best of all, a group of generous benefactors has pledged to match up to $175,000 of GivingTuesday donations. So every dollar you or your friends donate will be doubled!
Watch it all here -> 2020 Radiothon Playlist
#Giving Tuesday Radiothon schedule
Session 1: 9AM-12PM ET | 8-11AM CT | 7-10AM MT | 6-9AM PT
Mark Stone, President and CEO, FSHD Society
Scott Harper PhD, Principal Investigator, Nationwide Children's Hospital and The Ohio State University
John Hogan, President, AIbytes
Robert Gould PhD, President and CEO, Fulcrum Therapeutics
Chris Carrino, Brooklyn Nets announcer and FSHD advocate, Carrino foundation
Fran Sverdrup PhD, Associate Professor, Saint Louis University School of Medicine
Julie Cohen CGC, Genetic Counselor, Kennedy Krieger Muscle Center
Session 2: 12-3PM ET | 11AM to 2PM CT | 10AM-1PM MT | 9AM-12PM PT
Lucienne Ronco PhD, Biomarker Research Scientist, Fulcrum Therapeutics
Yi-Wen Chen PhD, Professor, Children's National Research Institute
Rabi Tawil MD, Director, Fields Center for FSHD Research, University of Rochester Medical Center
Molly White, VP Medical Communications and Advocacy, Dyne Therapeutics
Michelle Mellion MD, Senior Medical Director, Fulcrum Therapeutics
Amy Bekier, FSHD Board Member, San Diego Chapter Director
David Younger PhD, Psychologist and mindfulness/meditation teacher
Kiley Higgs, Project Manager, FSHD Clinical Trial Research Network
Curtis & Allison Calder, Founder of AnsonCalder , Utah Chapter Director
Session 3: 3-6PM ET | 2-5 PM CT | 1-4PM MT | 12-3PM PT
Russell Butterfield MD, Researcher, Neuromuscular specialist, University of Utah
Sue Aumiller, Director of Columbus Chapter, wife & mother to FSHD patients
Anthony Saleh PhD, CEO, miRecule, Inc.
Angela Lek PhD, Researcher, Yale University
Alec DeSimone PhD, Researcher, Yale University
Oxana Beskrovnaya PhD, Senior Vice President, Research, Dyne Therapeutics
Heloise Hoffmann, Southwest Florida FSHD Chapter Director, patient
Session 4: 6-11PM ET | 5-10PM CT | 4-9PM MT | 3-8 PM PT
Heidi Roy, Director of Stewardship, FSHD Society
Lexi Pappas, Leader of New England Walk & Roll
Kristin & Kate Zwickau, New England Chapter Director, caregiver & patient
Jeffrey Statland MD, Researcher & Associate Professor, University of Kansas Medical Center
Ryan Levinson, FSHD patient, athlete, adventurer
Gayle Divine, FSHD activist, retired talent agent, aunt of Dan Levy of Schitt's Creek
Sue Drescher, SF Bay Area Chapter Director, Caregiver/Sharegiver Group Leader
Ryan Wuebbles PhD, Researcher, University of Nevada-Reno and StrykaGen
Tony & Jenny Teel, Interabled couple
Steven Blier, Artistic Director, New York Festival of Song, Juilliard School
Jamshid Arjomand PhD, Chief Science Officer, FSHD Society
Josh Bergmann, Singer-songwriter with FSHD
Max Adler, film and television actor and producer, FSHD family member
Mark Stone, President and CEO, FSHD Society
THANK YOU TO OUR GENEROUS TELETHON SPONSORS!
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