In this video, Diego Cadavid, MD, Senior Vice President, Clinical Development, at Fulcrum Therapeutics provides an update on ReDUX4, the Phase 2b clinical trial currently underway testing the safety and… Read More »
ReDUX4 clinical trial update
Tips and tricks: Pencil grips
If you’re hand grip has weakened, here’s a product that could be helpful. Originally designed to help children grip a pencil properly, these pencil grips are manufactured from soft silicone… Read More »
Nationwide Virtual Walk & Roll for FSH Muscular Dystrophy
The FSHD Society, the world’s largest research-focused patient advocacy organization for facioscapulohumeral muscular dystrophy (FSHD), announced that it will hold a slew of virtual Walk & Roll to Cure FSHD… Read More »
Tips and Tricks – The IndeeLift
by Dani Liptak I get up in the middle of the night to use the bathroom. I take a step from my bed, reach for my walker, and instantly hit… Read More »
Finding a way to keep working
by Lynn Stevens, Bossier City, Louisiana About 10 years ago, the progression of FSHD on my body forced me to begin evaluating whether I should continue trying to work full-time… Read More »