Festive Evening of Song

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A Benefit for the FSHD Society

The FSHD Society intimately understands that we need to work with focused precision. There is a requirement to build and implement our strategy in the briefest of timeframes. We lean into this demand every day - with passion and purpose!

Time equals lives. Your support will speed up the day when we will have effective treatments for a million men, women, and children affected by FSHD. Thanks to you, we have made remarkable progress. With your continued support, we will reach our goal to have treatments for our families by 2025!

One hundred percent of net proceeds from this event benefit the FSHD Society, an award-winning 501(c)(3) non-profit tax-exempt U.S. charity.

Make a GIft
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The FSHD Society is a registered 501(c)(3) tax-exempt non-profit organization. Your gift is 100% tax-deductible. 

For questions about this event, please contact Beth Johnston.

Make Your GIft Today

ON BEHALF OF EVERY PATIENT AND THEIR FAMILIES WAITING FOR A CURE, WE THANK YOU!

Festive Evening of Song Committee Co-Chairs: Judy Seslowe, Ellen Hannan

And all of the Festive Evening Concert Committee:

  • Steven Blier
  • James Chin Sr.
  • Sheila Cohen
  • Rosalind Devon
  • Jennifer Egert
  • Susan Egert-Milling
  • Sue-ann Friedman
  • Beth & Jeff Johnston
  • Abigail Kirsch
  • Kevin J. Monahan
  • Emily Rosenfeld
  • Jamie Seslowe
  • Kenneth Seslowe
  • Marsha & Jerry Seslowe
  • Barbara St. Lifer

And, in loving memory of long-time Committee member, Jane Rittmaster