Our FSHD University webinar on January 27, 2022, was a revelation! We learned that the muscle weakness that causes scapular winging can lead to maladaptive, compensatory movements which themselves can result… Read More »
Shoulder dyskinesia in FSHD
Listening to my dreams
by Haviva Ner-David Part III of excerpts from Rabbi Ner-David’s book, Dreaming Against the Current I AM A tour guide for a large synagogue group visiting Israel, getting on and… Read More »
Re-igniting my passion
by Allison Calder, Salt Lake City, Utah This year, the Volunteer Leadership Summit came at just the right time for me. I had hit a slump as a chapter leader,… Read More »
Teen with FSHD is in top 40 of Science Talent Search
Our very own Heloise Hoffmann, leader of the Southwest Florida chapter and Walk & Roll, is a science rock star! The Society for Science named her a top 40 finalist… Read More »
FSHD Canada Foundation awards $2.8 million to CTRN
by June Kinoshita, FSHD Society The FSHD Canada Foundation, a close partner and fellow traveler of the FSHD Society since its founders Neil Camarta and Craig Kelley first met in… Read More »