Disclaimer: Not every exercise is appropriate or safe for every individual, so please use your best judgement and consult your health care provider. We’re excited to launch Feeling Fit with… Read More »
Abdominal and breathing exercises for FSHD
A sense of belonging
by Raj Badiani, FSHD UK This year’s FSHD Connect was the first one that I’d ever attended, and for me this started late on the Friday evening. Sadly, I had… Read More »
New movie will feature man with FSHD
Actors Max Adler and Danny Kurtzman team up for Good Bad Things Long-time FSHD Society champion, actor Max Adler, shared some exciting news with us that he has joined the… Read More »
True Cost of FSHD
Part of our battle plan to ensure patients will have access to treatments by June Kinoshita, FSHD Society The FSHD Society is undertaking a major study of the full socioeconomic… Read More »
Putting breathing issues on the front burner
Dan Perez’s fierce advocacy will advance knowledge and extend the lives of people with FSHD Breathing complications in FSHD can be deadly, but with the lion’s share of research focused… Read More »