University of Minnesota lab reports promising results in mouse FSHD studies by Fred Thys, Weymouth, Massachusetts Work by a team led by Dr. Rita Perlingeiro at the University of Minnesota… Read More »
Making strides toward stem cell therapies
Challenging the narrative: new film stars actor with FSHD
Good Bad Things is unlike any film you’ve ever seen by Erin Saxon, FSHD Society Good Bad Things is almost here! Last August, we shared updates on the project, and… Read More »
Falling backwards and what to do about it
From the Women on Wellness group At our May meeting, one member shared a great question: Has anyone had experience with falling backwards due to their lordosis? She didn’t feel… Read More »
Arrowhead files for regulatory clearance to start a Phase 1/2 study in FSHD
From Arrowhead Pharmaceuticals PASADENA, Calif.–(BUSINESS WIRE)–Jul. 17, 2023– Arrowhead Pharmaceuticals, Inc. (NASDAQ: ARWR) today announced that it has filed an application for clearance to initiate a Phase 1/2 clinical trial… Read More »
True Cost of FSHD survey
Preliminary findings from our survey to understand the economic impact of FSHD by June Kinoshita, FSHD Society As a growing number of drugs enter clinical trials for FSHD, a question… Read More »