by Ken Kahtava, FSHD Society This blog post was originally published here on the Project Mercury website. On 11 May in Leiden, NL, the Project Mercury global task force members met for… Read More »
Unleashing the Power of Collaboration: Achieving More for FSHD Together
Managing Fatigue
Our May Women on Wellness group discussion focused on a topic that is always a big concern, fatigue. This is a group of women who meet monthly on Zoom and… Read More »
Raising our voice to raise our seats!
Medicare will now cover elevating power wheelchair seats by Ranae Beeker, RN Margaret Mead opined: “Never doubt that a small group of thoughtful, committed individuals can change the world. In fact, it’s… Read More »
An Unforgettable Experience at Leicester City’s Disability Matters Matchday
The city’s famed football club engages, inspires, and empowers this FSHD family Last month, father and daughter Michael and Alexa Penwell had an incredible experience in Leicester City, England. They… Read More »
New frontiers in muscle regeneration for FSHD
Once seen as a long shot, now more companies are looking at strategies to regrow muscles by Jamshid Arjomand, PhD, Chief Science Officer Over the past few years, there has… Read More »