Mental health crises are prevalent in our community. Help is out there A diagnosis of FSHD poses life-long challenges. Individuals live with an undercurrent of anxiety about how their symptoms… Read More »
What to do in a crisis
Your practical guide to clinical trials
by Amanda Hill, FSHD Society How do I find clinical trials that are recruiting participants? Our website is one of the best ways to find clinical trials that are recruiting…. Read More »
Feeling Fit: Exercising your hands and arms
Textbook descriptions of FSH muscular dystrophy focus on weakness in biceps and shoulder blades, but many individuals also experience weakness that affects their hands, wrists, and forearms. In our March… Read More »
The challenges of the new era
What can you do to help? When we say that we are embarking on a new era in clinical trials, what do we mean? After all, we have seen previous… Read More »
About early-onset FSHD
Our webinar with Dr. Tina Duong remains timely and important for families with FSHD. In it, she focuses on individuals with early-onset FSHD, meaning those who develop symptoms in their… Read More »